Fundación Amigos Contra el Cáncer Infantil (FACCI)

La Fundación Amigos Contra el Cáncer Infantil (FACCI) is a non-profit organization that was born in 2004 to provide help to children of limited economic means who are suffering from cancer and who are being treated at the Hospital Infantil Robert Reid Cabral. FACCI has constructed, remodeled and maintains the Hospital’s different oncology areas. In May of 2014, Casa FACCI was inaugurated, a place where children with cancer who live in the interior of the country can stay for free while they are receiving their treatments.

General Information

  • Legal Name: Fundación Amigos Contra el Cáncer Infantil
  • Acronym: FACCI
  • Country of Origin: Dominican Republic
  • RNC/Tax ID No: 430006025
  • Geographic Areas: National Territory, Santo Domingo
  • Theme Areas: Children and Youth, Health
  • Quantity and Type of Beneficiaries:

    FACCI helps children and young people with cancer.

    FACCI has more than 850 registered cases and currently has 450 patients who are actively in treatment or follow-up.

The Team

Management Team:

Board Members:

Alexandra Matos de Purcell, President
Griselda Carrón, Vice President
Olga Purcell de Elias, Secretary
Edmundo Garcia, Treasurer
Amanda Malkun, Vocal
Maria Giselle Bonelly de Ricart, Vocal
Leonor Montes, Vocal

Contact Information

Contact Person

  • Name: Alexandra Matos de Purcell and Griselda Carrón
  • Position: President and Vice President
  • Telephone: (809) 533-7596
  • Email: amatospurcell@gmail.com; Griselda_carron@yahoo.com

Operation

  • Type of Organization: Non-Profit Organization
  • International Affiliations:

    St. Jude Children’s Research Hospital
    Keira Grace Foundation

  • Years of Operation: Since 2004
  • Number of Employees: 7
  • Number of Members: N/A
  • Number of Volunteers:

    26

  • Sources of Funding:

    Private Donations
    Fundraising Activities

  • Products/Services:
  • Total Income: 2014: RD$17,255,532.83
  • Total Expenses: 2014: RD$15,491,693.79

Mission/Vision

MISSION:

To improve the survival rate and quality of life of children with cancer and their families, though support programs so that they receive timely, proper treatment.

VISION:

To be recognized as a modern service institution, driven by a strong sense of social responsibility, committed to fighting for children of limited economic resources who are suffering from cancer in the Dominican Republic.

OBJECTIVES:

1) To identify children suffering from cancer who do not have sufficient economic resources, in order to help and accompany them during their fight against this disease.

2) To channel medical treatments of the children at the Hospital Infantil Dr. Robert Reid Cabral, so that these children can receive medical and psychological assistance in a continuous and safe manner.

3) To improve the quality of service, contributing medicines, chemotherapy, medical support, diagnostic tests, adequate facilities and donated equipment.

4) To serve as a link to establish training programs for doctors, nurses and psychologists from the hospital with institutions and hospitals abroad.

5) To obtain funds through different activities for the sustainability of the foundation’s programs and projects.
6) To offer permanent support to these children and the family members accompanying them so they can better confront and overcome this disease and its treatment.
7) To make available the services offered by the foundation to the community in general and to the pediatric oncology community in particular.

8) To contribute to education with respect to pediatric oncology in this country, since an early diagnosis can save a life.

Primary Programs and Projects

PROGRAMS:

Treatment for All:

This program summarizes our wish to support all children suffering from cancer who arrive at the Hospital Infantil Dr. Robert Reid Cabral, so that they have access to appropriate treatment with necessary medicine at the right time according to their needs, and that economic limitations are not an obstacle.

Analysis of Diagnosis:

The Foundation provides resources to allow the children access to tests that are not conducted at the Hospital Infantil. The diagnostic imaging tests are sent to specialized health centers. The inmunotipification of the pathologies are sent to the United States, and the blood work to private laboratories, thereby contributing to accurate and timely diagnoses.

Nutrition:

Nutrition is an important part of cancer treatments. It is common that that these children arrive malnourished to the center. The children can lose their appetites as a result of the disease. Adequate food before, during and after the treatment can help the patient feel better and conserve his/her strength.

Homework Lab and Games:

This room has is its goal to offer children the ability to continue growing and developing, especially academically, while they receive treatment. It is equipped with computers, tables with chairs to work, book shelves, and educational games, and is supervised by volunteers and interns in the area of education.

Transportation for All:

A high percentage of children with cancer who are treated at the Hospital Infantil do not have the resources to travel to the Health Center to continue their treatment, since they live in isolated areas or in the interior of the country. FACCI has developed this program to facilitate the means for the family, in such a way that they child does not have to interrupt his/her treatment until he/she is completely healthy.

PROJECTS:

A place where high risk children receiving chemotherapy treatment may stay until their immune systems adequately respond and they can return to their homes without this representing a risk to their lives.

In addition, Casa FACCI contributes to eliminating the abandonment of treatment due to costs of transportation or housing in the city for the child and his/her family.

We are in the process of developing a support program for the donation of blood and organizing a blood bank for children suffering from cancer. Blood is extremely important in the treatment and cure process of the patients, since due to the treatment they receive many of the children’s hemoglobin has dropped to below-normal levels, presenting severe anemia, while others suffer from strong hemorrhages, both cases requiring urgent complete transfusions of blood and platelets.

As part of this program we have created an alliance with the Laboratorio de Referencia for the acquisition of products and services that our children need.

Blood Bank:

With the creation of this bank, the Foundation intends to reach those people who could be donors to give necessary blood to children with cancer at the moment that they need it.

Onco-Pediatric Area (HIRRC):

Another of FACCI’s big projects is the creation of an onco-pediatric area in the Hospital Infantil Dr. Robert Reid Cabral. All of the areas interacting on a day-to-day basis with children with cancer will be concentrated. These are consultations, little school, dormitory, lumbar puncture, chemotherapy, and others.

Training of Nurses:

We will continue to train nurses who give support to children with cancer in order to keep them up-to-date on the daily care that they give to their patients.

Early Detection Campaign:

FACCI has a project to increase its early childhood cancer detection campaign, raising it to the national level.

In the program people in cities and municipalities will be trained to teach parents about the symptoms that children with cancer display so they can be timely addressed, and in this way increase the percentage of children who overcome the disease.

Expert Comments

We ask each of our experts to recommend five entities in their area(s) of expertise which have had a positive impact. Below please find comments from our experts who have recommended this entity.

There are no comments in this area.
There are no comments in this area.
There are no comments in this area.